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Reference : UMR6297-GAECLI-001
Workplace : NANTES
Date of publication : Wednesday, February 12, 2020
Type of Contract : FTC Scientist
Contract Period : 18 months
Expected date of employment : 1 April 2020
Proportion of work : Full time
Remuneration : 2643€ à 3766€ per month depending on the professional experience
Desired level of education : PhD
Experience required : 1 to 4 years
The aim will be to conduct a sociological field survey by observation and interviews with adolescent patients suffering from rare Duchenne disease. The challenge of the study will thus be to explore, from a sociological and regulatory point of view, the tension between the optimization of care and respect for the fundamental rights of children (in the sense of legal minority). Inductive research, of ethnographic type, will be based on the realization of twenty to thirty interviews with adolescents (10 to 15 years) and their families, on twenty interviews with caregivers, and on a hundred 'observations of clinical consultations. The survey will take place in the homes of young patients who have been met in the context of care centers: the reference centers for rare neuromuscular diseases (CRMNR) in Nantes and Paris-Necker.
- Carry out a state of the art and an exhaustive bibliography at the intersection of the sociology of law and the sociology of health on patients with rare diseases and the ways in which they are taken care of by medical institutions.
- Carry out observations (around a hundred) of medical consultations in order to describe the caregiver / patient interactions, i.e. the co-production of medical data during multidisciplinary consultations dedicated to Duchenne's disease. In addition to writing the field journal, the ethnographer will set up a written support, in the form of a table, in order to draw up an inventory of the modes of registration in care activities: co-presence spaces, discourse registers, tools and techniques used, gestures, etc. The aim here is to draw up a general outline of the medical environment in which adolescents affected by Duchenne's disease evolve.
- Carry out around twenty interviews with healthcare professionals (pediatrician, geneticist, dietitian, physical and rehabilitation doctor, physiotherapist, occupational therapist, psychologist, psychomotrician, etc.) and from 20 to 30 targeted interviews understanding with adolescents and their parents.
- Compare the interviews transcribed and analyze them in a cross-functional way as a team.
- Write a research report that reports on the empirical study and its conclusions. Resumption of the problem in the light of research results, formulation of sociological interpretations, updating of bibliographic sources, putting into perspective with the state of the art, comparative analysis with Anglo-American literature.
- Wrote several articles in international scientific journals on the sociology of medicine, including two articles in English for the journals Children & Society, Sociology of Health & Illness.
- Present the results of work in several international scientific symposia and conferences (including at least two in English) abroad.
- Candidates must have completed a PhD in sociology
- Empirical field skills: observations and interviews. Observation and social skills
- Significant skills and experience in sociology of health and in sociology of health law. A hook knowlege and an experience in rare degenerative diseases is an asset.
- Autonomy and initiative in work
- Scientific rigor and organizational capacity
- Ability to work collaboratively on multidisciplinary projects
- Good writing skills / ability to value research results (writing articles, communicating in conferences, ...)
- Written and oral command of English
- Good social skills
The DCS (Right and Social Change, UMR 6297, chemin de la Censive du Tertre, Nantes) laboratory, which is made up of 200 members, analyzes the role of the legal phenomenon in the transformations of contemporary society. DCS seeks to articulate an internal perspective (legal research) and an external perspective (legal research). The legal phenomenon is today part of multiple spatial scales ranging from local to global. Also, the DCS laboratory has developed studies relating to the local scale and studies relating to the European and international space. The approach supported by the laboratory aims to couple three dimensions of legal analysis: on the one hand , analysis of the rules and their scheduling; on the other hand, the analysis of the overall coherence of rights within the framework of an approach relating to intra-disciplinarity or the “dialogue of rights between them” making it possible to identify in particular common dynamics, emerging transversal themes, adequate analytical frameworks; finally, the analysis of the foundations of law and the impact of law on society through an interdisciplinary approach based on the mobilization of disciplines related to law (sociology, history, philosophy, political science).
The candidate will be brought to work for the Justice and Society axis and will be placed under the direct responsibility of Gaëtan Cliquennois (researcher at CNRS).
Constraints and risks
Scientific program financed by the 'Fondation de France'.
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